Darin Nakakihara

The channel is a first-person vlog documenting the creator’s experience living with ALS. Videos focus on personal health updates and emotional reflections, practical challenges like insurance and loss of voice, and adaptations for continuing work—including assistive technology and Apple-based workflows for content creation.

Channel stats

Calculated from videos published in the last 12 months

1 video every 33 days
Publishing pace
Irregular
Publishing regularity
5 min
Average video duration
4 min
Published time per month

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Latest videos

This Is What I Want My Wife to Hear After I’m Gone | ALS Love Letter
January 4, 2026
December Changed Me More Than Expected (ALS Update)
December 8, 2025
I Thought ALS Was The End But I Was Wrong
November 7, 2025
I Have ALS, But I’m Not Giving Up
October 30, 2025
Living with ALS Is Hard Enough… Then My Insurance Did THIS
October 2, 2025
This Saved My Life
September 7, 2025
I Lost My Voice to ALS Here's How I'm Adapting Now
August 12, 2025
How I Still Create Content With ALS – Using Just One Finger and the Apple Ecosystem
July 12, 2025
My ALS Health Update: What Life Looks Like Right Now (Raw & Honest)
June 22, 2025
ALS Update: What This Week Looked Like (Falls, Breathing, & Finding Joy Anyway)
June 8, 2025